Invitation to Participate in ANONYMOUS Thesis Research

[erikajackson]

Invitation to Participate: Recipients’ Perspectives Regarding Expanded Carrier Screening of Gamete Donors

Dear Potential Participant,

You are invited to participate in an anonymous master of science thesis research study at the University of South Carolina School of Medicine. The objective of this study is to determine how much genetic carrier screening information a recipient would prefer to receive about their potential egg and sperm donors. The study will also aim to identify factors that influence an intended parent’s choice of donor based on genetic screening results.
We are inviting both parents of donor-conceived children and intended parents currently in the process of selecting/using a donor to participate. Participation in this study is meant to benefit intended parents by identifying whether increased education of genetic screening options could improve the donor selection process. We believe that the results of this study can add to the discussion concerning genetic screening of egg and sperm donors, which could lead to greater consistency among donor screening practices.
If you decide to participate, you will be asked to complete an anonymous online questionnaire about various issues surrounding the genetic screening of egg and sperm donors. All responses are kept anonymous and confidential. The data collected may be published or presented, but your responses will not be associated with any personally identifying information. The survey will take approximately 15 minutes to complete, and participation is completely voluntary. You do not have to answer any questions that you do not wish to answer and you may discontinue the survey at any time. By completing the survey, you are consenting that you have read and understand this information.
Thank you for your time and participation in this study. Your answers will help to improve the donor screening and selection process for future parents. If you have any questions, or would like more information, please contact me or my advisor, Janice Edwards, using the contact information below. Thank you for considering participating in this research project. Your input is invaluable and we appreciate your time.

Link to access survey: https://www.surveymonkey.com/r/LJLSDP9

Erika Jackson
Genetic Counseling Intern
University of South Carolina School of Medicine
Genetic Counseling Program
2 Medical Park, Suite 103
Columbia, SC 29203
(541) 729-9955
erika.jackson@uscmed.sc.edu

Janice Edwards, MS, CGC
Clinical Professor and Director
University of South Carolina School of Medicine
Genetic Counseling Program
2 Medical Park, Suite 103
Columbia, SC 29203
(803) 545-5706
Janice.edwards@uscmed.sc.edu

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